The Silence of Deafness is an Abstract, not an Absolute.
So I find most days I have to explain to people about my hearing, and it nearly always doesnt work in the sence that I can say the official title of my hearing loss is, ‘Severely deaf’, and yet I can answer people when they talk to me!
As I have explained before, Im neither completely deaf or completely hearing, im severely deaf, thats the title, and yet when I answer someone who asks me a question there like, WTF?? I thought you were deaf!! Deaf awarness is the problem, or the lack thereof! I have bilateral hearing aids, I lipread, and I sign only a tiny bit, my Lipreading is my main means of communication, my speach and voice sounds like that of a hearing person….but Im not! I cant hear a lot of things, and with that EVERY DAYYYY without fail I find myself like a broken record explaining, that I understand what you say and I can talk but I cant HEAR you!! People cant seem to understand that! and the days your tired and cant concentrate on lipreading and they ask you questions and you cant answer them, their like, I thought you said you could understand me and today you cant?? People actually think I make it up! But I dont, I suffer, and Sometimes its enough to make you want to lock yourself away, but you cant because life goes on and tough shit!
If we all cant learn to understand that deaf is deaf HOH is HOH and yes we actually can in a way all be lumped in together as a group and get on with it, but no…I see it so much, mainly in the Deaf community itself, that Profoundly deaf people dont want to know you if you can speak, that means you can hear and your not the same as them!!… Actually my situation can be worse, I believe, and this is a horrible thing to say but sometimes iit can be true: ‘What you never had you never miss’
Now this is only a small minority of deaf people im talking about here, the most iv met and spoken to are lovely and im mad about them, but there are those few, and it makes no sence to me, why anyone should be treated differently for any reason!
I had perfect hearing, and now I dont and I have had to adjust and its a much harder thing and it messes you up, and the fact that some people dont want to understand is so upsetting.
Im in the middle of all this, I have no rock to call my own, Im neither completely deaf or completely hearing, no doctor, no interpreter, no person, can understand unless they have had this proplem, and so few do… Iv spoken to people online to you lot and its great to discuss the problems on here because ye understand, but in real life iv only ever met, HOH people or profoundly deaf people, no one like me in the middle. I have no one to truely Understand…I have people to talk to about it, Keith is the best in the world, but sometimes I feel so isolated and even though it seems like im doing so well and understand everything, the truth is sometimes I cant, and sometimes I just want to be on my own. Most days it doesnt bother me, but other days it does, and theres nothing I can do about that! Its up to other people to understand, not me, im the one who has to live with it already, why should I have to to change any more, iv enough adjustments to make!
Yet there is a part of me who wonders should I just be deaf, as in only use sign, but that wouldnt be the truth, I can hear little things, and I lipread really well, and im well able to speak, so NO I dont need to send myself to a group because it bothers other people!
Yet there is a danger of me waking one day soon and ill have no hearing at all… I cant lie anymore it does scare me, it scares the living shit out of me, and yet if it happens I know ill adjust again, and get on with it, but still I cant help feeling scared about loosing the hearing I have left. I have had hearing, and loosing it is a big deal… I have adjusted this far, but could I really live without Music, Keiths voice, My families voices, birdies, everything we take for granted…
Im sure I could but it would be so hard, I am loosing frequencies on a regular basis, and im trying so hard to deal with it, and adjust…. but will there be a time where I cant adjust anymore? what then?
Currently im involved in the Deaf Community Center in Limerick, and they are great, Sandra there so so nice and I feel like for once I have a place in the deaf community where im actually accepted for the problems I have, everyone is welcome there, and everyone gets on, no matter how severe, profound or mild your hearing problems are…I feel more people and places have to take that attitude.
I for one would welcome it with open arms.
You know the guys collecting for something or other that seem to jump out of the clouds from nowhere, and invade ur day unexpectedly when your absentmindedly strolling through town thinking about aft things that may or may not need to be done!!
Being severely deaf, I have a thing I do if anyone like this jumps at me and goes to give me a hug or shake my hand and once they got you, thats it your there for an hour and eventually ur talked into handing over your account number!!, well Im going straight to hell for this but it works, and Im not entirely lying either!!, I usually sign to them and mouth that Im deaf!, well Im not lying am I, its just a quick and polite way of saying leave me alone!, well I did it today, but the guy didnt let up, he followed me! and said, are you really?? really are you deaf??? and mumbled on about people doing it often to get him off his back, He had a beard and town was busy and not a great environment for lipreading, so the truth was, I couldnt hear him properly so I signed it again and pointed to my hearing aids, and walked off, and he yelled something after me!! I was pretty pissed off over that, that was kind ignorant on his part, who yells at the back of a deaf person?? Im not completely deaf no, but still that was uncalled for! This was the same guy that did it to me again about a week ago, my little sister was with me and he did the same thing so its not the first time it happened with him!
yet I felt a little guilty as he is just doing his job as invasive and all as it is, so I stopped around the corner and wrote a note, I have no Idea why, Im well able to talk I just didnt want to, so I wrote a quick note with the entention of handing it to him quickly and be off on my merry way, my note said,
‘Im sorry I walked away I know ur just doing ur job, but I am deaf, and I cant hear you properly and if I had more time id try to listen, good luck’
I turned around to walk back to where he was, and there he was running towards me, and he said, ‘Im so sorry for being so rude,’ I handed him the note, he continued, ‘ Its just so many people do that just to be left alone, I thought u were the same, Im so sorry for behaving that way’, he read the note, and I said, ‘ur fine but I do have a hearing problem and didnt have the time to lipread you I know ur only doing ur job but be carefull, there are some of us who dont lie’!
He said im so sorry, again and shook my hand and smiled, and I went to work! I was pissed at first with the way he reacted to me on the street, but I admired him for swallowing his pride and following me up to say sorry, that was genuinly nice
But in all fairness he should be more carefull and learn from what happened, these people walk the street and have no training first, I hope he knows better now!
Lette
Hello, I contacted you today (Friday, May 19 2006) about a negative/debit transaction showing up on my account’s online banking for over $1300 on May 19. The largest withdrawal that I have made recently was for $100 at an ATM in Brooklyn. I simply wanted to confirm that the information shown on your online banking website was correct, and if it was- I wanted to find out what I could do to prevent this money from being stolen from my account, or at least find out what the transaction was for so that I would know what had happened to my account.
I am profoundly deaf and cannot hear over the phone. Multiple representatives of Commerce Bank illegally refused to speak to me through my interpreter. This went on for over a half an hour as we were asked to hold time and time again. Had any random female called up with the information that we provided, the information would have been given to us long ago, and your representative confirmed this to be true. Because my interpreter was a male, your represenatives refused to accomodate my disability in any reasonable way. I offered to verify my information in multiple ways–the number that we called from is the number on the account, we asked them to call back at that number. I spoke into the phone and identified myself as Sara *** (name deleted), and stated that I am deaf. I offered to verify my information in any way that the represenatives saw fit. And they continued to refuse to accomodate me.
Had any random female from any random payphone called up with half of the information that we were willing to provide, she would not have had to jump through these hoops. But I- the legitimate account owner- called up and was illegally denied assistance because of my disability and because my trusted interpreter of choice was a male. This was not an issue of identity verification–we offered to have me speak into the phone multiple times, and when I was finally permitted the chance to do so- it made no difference at all.
At one point I was told to fill out a customer service request on your website- as if an anonymous internet transaction from an unknown IP address was somehow more verification of my identity than providing any wide variety of confidential and personally identifying information over the phone FROM THE PHONE NUMBER OF RECORD, or better yet- having them call us back AT THE NUMBER THAT YOU HAVE ON YOUR RECORDS. However, when I tried to access your online banking site to fill out this form, I was greeted with an error message stating that I should call commerce bank at (number deleted).
Finally, we requested that your representative call us back at the number on the account. We have been waiting for this call for over a half an hour. As I write this email, I am preparing to walk three blocks in the rain to the bank to request information that I should have had over an hour ago without the illegal discrimination and aggravation “America’s Most Convenient Bank” has put me through today.
Regards,
Sara **name deleted
Update: I went to the bank, and spoke to a representative and was informed that the “debit” is actually a pending DEPOSIT. (The online banking interface clearly identifies it as a DEBIT. A negative transaction against my account.) I was forced to walk three blocks in the rain because of an inaccurate and poorly designed website, and blatant discrimination against deaf patrons.
We called at approximately 11AM. It is now 2:47PM and the “we will call you back in 10 minutes” phonecall never materialized. I bet they’re patting themselves on the back now for successfully foiling a social engineering attempt. I mean. Honestly. Who would believe that a deaf person would ever want to call a bank, or that the deaf person wouldn’t be able to hear on the phone to talk to them?? It *must* be some random attempt by some random person to illegally gain access about whether a $1300 debit against an account is fraudulent or not. And the fact that it’s from the number on record? Pshaw. Us social engineers must have broken in. Deafness is an urban-freaking-legand anyway.
Suffice to say, as soon as that $1300 clears, I’m moving all my business to a new bank. Commerce Bank sure is convenient. Until you have to interact with them as a deaf customer.
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