Somewhat Silent

The Silence of Deafness is an Abstract, not an Absolute.

June 15, 2008

Working with an interpreter

by @ 2:16 pm. Filed under Misc

I will be working with an interpreter next year, I was still only thinking about it when I heard from the interpreter yesterday and said that it already has been confirmed for next year…

thing is, My understanding and reading of sign is very good, but my production of sign is crap to say the least, but I dont really need to because I have my voice and im not afraid to use it! So I will be combining lipreading, sign and speaking to make it through my degree next year. Will it work?

I have never worked with a terp before, but I know her and her sign is very clear and I understand her very good, but I am just a bit nervous as I usually stick to myself in college to get things done, having someone with me all the time is going to be different, any sugestions for a newbie with a terp?

cheers.

April 24, 2008

I have finally been given an answer!

by @ 10:47 am. Filed under Sounds, Experiences, Discussion

…for what the ‘breathing through my ears’ feeling actually is!

I went in to the specialist yesterday for my first review since the operation in January and there was good and bad news.

Good news: My ear drum is healed. and I have been given an explanation to what this sensation I and everyone else on here has been having!

Bad News: My left ear drum is healed but is retracted again and it is inevitable that fluid will build up again very soon, and they dont want to risk putting tubes back in as my drums wont be able to take it, and the fluid will detieorate the middle ear bones and my residule hearing will suffer regardless!

Also… there is no cure for the sensation of breathing through your ears!…

What it is: My estachian tubes are in a constant state of dysfunction, they are always closed and in a constant state of pressure. I dont breath or hear or feel the way whats considered to be normal. My estachian tubes are under developed. This breathing through my ears is when the tubes open for a brief moment and actually function properly as they are supposed to!!!!

But because I have lived with this all my life, this feeling is hurtfull and uncomfortable. when I pinch my nose and suck in to make the discomfort go away, all im doing is putting my estachian tubes back into a state of dysfunction, which is what im used to and what feels normal to me!

He was honest and he said, he wouldnt give me false hopes, he said there is no cure whatso ever and that I will just have to learn to live with it.

He said it is common for people who have PET or ETD (Palatous estachian tube, or estachian tube dysfunction) I have the latter and this is my situation.

yours may be different to mine, but to be honest I dont mind that there is no cure, I wish there was but at least I have an answer :) :)

February 3, 2008

Operation Number 10!

by @ 10:28 am. Filed under Thoughts, Experiences

So its official, I have to have my tenth operation on the 21st of Febuary, read more at my blog: www.kimododreams.com/lette/?p=329 because I cant add all the links on here! cheers :)

December 20, 2007

Hearing Dogs For Deaf People!

by @ 1:54 pm. Filed under Misc, Thoughts, Accessibility, Discussion

Ok I obviously dont get out enough! I never knew this! I can only find a UK link, but i think its a wonderful idea to have a dog that can be your partner and be your ears! they are trained to alert their owners to alarms, car horns, traffic, doorbells, factory and work related sounds, every sound both work and home related to help you feel secure in your hearing difficulty!

WOW!!! I want one! :p haha no really I think its a great idea, heres the UK link to read about it,: http://www.hearingdogs.org.uk/ 

is this service available anywhere else in the world? I cant find any links for here in Ireland, but ill keep digging! :)

I took a risk and sent him an Email!

by @ 10:29 am. Filed under Thoughts, Accessibility, Experiences, Discussion

I have just sent an email to my Specialist, I hope he doesnt think im a wierdo or anything, Im just deeply interested in finding out this puzzle that is the ‘Breathing through my ears’ phenomenon! This is the Email:

Mr Fenton, My name is Colette McNamara, a longterm patient of yours, please forgive me for emailing you on this email, as it was the only one I could access through the web to get in contact with you.
I realise you are busy, and I never get a chance to speak with you in the clinic, but I was hoping when you had the time if you would check out this weblog about the condition I complain and research about.
I write for a site called Somewhat Silent, and international weblog about deaf and hard of hearing and also medical issues.
The one subject I wrote about was well recieved with over 150 responces respectively about the title, ‘Breathing Through My Ears’
The condition of which I originally came to you with, and of which you have worked excellently to figure out, In april I got T-Tubes inserted and only called into see you last week about an irritation in my left ear which you perscribed ear drops to solve, and I have to return to you again in January.
I appreciate your help in trying to solve my ear problems that have been with me for 17years now! Prior to you there was Mr Keogh and now yourself!
I wanted to thank you personally for your efforts and wanted to share with you the responces I have recieved in trying to figure out this problem, of which many people all over the world also live with and have no name for, I started to write about this problem in June 2006 here is the link to that initial discussion:
http://somewhatsilent.com/2006/06/25/im-breathing-thru-my-ears/
Then I updated the discussion as I had met you and had worked a little through it:
http://somewhatsilent.com/2007/02/03/breathing-through-my-ears-discomfort-continued/
The Site itself is Somewhat silent and its link is here: http://somewhatsilent.com/
We would also love to have your say on the site, please feel free to email me back with your thoughts on the matter, I have undergone all this since I was 7 and have a deep interest in the medical side of things, not just the basics The face that there are an infinate ammount of people out there and their specialists are just saying its a simple ear infection intregues me, and I hope you too, I would love to learn more about it!
I hope you find it of interest, I go under the name Lette on the site.Thank you for your time, and I apologise for emailing you here again.
Colette McNamara.

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