The Silence of Deafness is an Abstract, not an Absolute.
And so I write once again today on a rainy October day, sipping the organic coffee and wondering what is the next thing to rant about. Lette’s post reminded me of another situation that I’m trying to figure out.
As I’ve mentioned in the past threads that I’m born deaf with congenital damage but function as HoH which could lead to clashes of self-identity in being the Great Neo debating whether he is for the Machines or the Humans.
Currently, I am living in a college town that is an hour south from where I used to reside in and once a week or so, I’d drive up northbound to get away from the mundanity of things. How I got here is a long story since a year ago. My social life is not bad but given the fact that I get around in the ‘hearing’ world when I can and deal with the deaf community time to time for services needed, even though I work for one of their agences now on a part-time basis.
Socially, I don’t hang with deaf people much around here except crossing paths with them a few times a month while with the hearing world, I do bump into familiar faces and network as much for my creative endeavors.
There are less than about 10 HoHs around here in Vermont…at least from what I’m told but the figures could be inaccurate. And my method to communicate is by lip-reading, using Relay calls (only for business or emergencies) and text/email by the Blackberry to which I have unlimited use for. And have a Sorenson video phone that allows me to talk to local deaf people on the tv screen and have not tested the web cam to video phone experiment yet.
The video phone requires high speed internet access and to which I have DSL attached to it and my computer. Unfortunately, I despise land phones due to bad experiences in the past with telemarketers and have to struggle to understand what the person is saying. Although, there is the CapTel tech letting the captions go across the screen on the phone ‘live’ as you are seeing what the person says and in the meantime, allow you to use your natural voice.
The problem is that it requires a phone service and that adds up the bill. Plus, it makes having a 2nd phone redundant when my Blackberry can do the job when I’m out of the house. The catch-22 is that my Blackberry does not have a voice plan and I rarely make calls that if I added a voice plan, it would not be worth it.
Now…when I’m out to other places and meet people, I carry my business cards just in case. The cards mention my name, email address and cell phone #. That’s it. My web url is already obviously printed for folks to look up.
I’ve seen guys talk to women (yes, I know..I’m treading this territory again), they’re conditioned to ask for her phone # if she’s interested. I did’nt realize up to until this point that this might backfire on me due to my lack of voice plan on the Blackberry and landphones. I’ve noticed that women love to gab on the phone for hours on their cellphones and text. Clearly, texting is good for making plans ‘on the go’ but not for lengthy conversations.
I’ve been careful to try not to get into a dark area in bars/clubs when talking to someone so I can see their lips and understand what they’re saying. I’m not involved with anyone yet, but I have a growing concern that if she starts to like me and wants to have a conversation, how am I supposed to convince her that I use the Blackberry/email/Instant Messaging to communicate besides one on one in person as the best method?
If I used Relay calls, it’s going to make the woman very uncomfortable and awkward and wonder why I would use that when I was able to talk to her with my voice. This option will never be used by me unless for extreme emergencies. I don’t like the idea of forking out $40 bucks for a second phone service that I will almost never use, just so the woman (whoever she is) and I would have a conversation.
She would not have access to video phone technology because it is clearly for the deaf and we use them for free. The only way to use that is if she has a web cam. So, how many women out there would have that?
Texting…is free for me…but if I continue using that method, it will cost the person on the other end. E-mail and web browsing is free as well. If I used the phone feature, it will cost me .20 cents a minute, plus long distance if applicable.
When I go out and I see someone interesting, I always ask for an email address AFTER the conversation. Because if I asked for a phone #, the girl would probably think twice, maybe after seeing my hearing-aid. I’ve asked the local deaf people on advice….
They had no clue how to advise me on this.
The only thing is that if she had a computer and uses Instant Messaging, it would be the closest thing to having a phone conversation and I have 2 IM programs on my Blackberry. One of the best tools for the phone.
So really…how in hell do I convince women not to shy away from the fact that I use methods a bit different than a phone call to converse and not ‘write me off’ just because I look harmless. I’ve heard stories that women would look at certain men and write off some of them that appear ‘harmless’ and un-exciting to the point of being unworthy of a conversation. I can’t date deaf women here because there’s not a lot of them my age in this state or even too far spread apart in areas I don’t even know and some of them are very self-absorbed in their world.
For instance, I walked to a wine bar last Friday night….saw a HoH/deaf girl that I remembered being acquainted with from the deaf community and she saw me, then waved but was busy talking to an older man (she’s about early to mid 20s). I went to a table and ordered a drink while watching a ballgame.
A while later, she leaves with this guy without even bothering to say hello to me. And this was the only time I saw her again in more than a year or so.
What am I supposed to do then? How am I supposed to tear the wall down? Maybe I should ask Pink Floyd?
So I find most days I have to explain to people about my hearing, and it nearly always doesnt work in the sence that I can say the official title of my hearing loss is, ‘Severely deaf’, and yet I can answer people when they talk to me!
As I have explained before, Im neither completely deaf or completely hearing, im severely deaf, thats the title, and yet when I answer someone who asks me a question there like, WTF?? I thought you were deaf!! Deaf awarness is the problem, or the lack thereof! I have bilateral hearing aids, I lipread, and I sign only a tiny bit, my Lipreading is my main means of communication, my speach and voice sounds like that of a hearing person….but Im not! I cant hear a lot of things, and with that EVERY DAYYYY without fail I find myself like a broken record explaining, that I understand what you say and I can talk but I cant HEAR you!! People cant seem to understand that! and the days your tired and cant concentrate on lipreading and they ask you questions and you cant answer them, their like, I thought you said you could understand me and today you cant?? People actually think I make it up! But I dont, I suffer, and Sometimes its enough to make you want to lock yourself away, but you cant because life goes on and tough shit!
If we all cant learn to understand that deaf is deaf HOH is HOH and yes we actually can in a way all be lumped in together as a group and get on with it, but no…I see it so much, mainly in the Deaf community itself, that Profoundly deaf people dont want to know you if you can speak, that means you can hear and your not the same as them!!… Actually my situation can be worse, I believe, and this is a horrible thing to say but sometimes iit can be true: ‘What you never had you never miss’
Now this is only a small minority of deaf people im talking about here, the most iv met and spoken to are lovely and im mad about them, but there are those few, and it makes no sence to me, why anyone should be treated differently for any reason!
I had perfect hearing, and now I dont and I have had to adjust and its a much harder thing and it messes you up, and the fact that some people dont want to understand is so upsetting.
Im in the middle of all this, I have no rock to call my own, Im neither completely deaf or completely hearing, no doctor, no interpreter, no person, can understand unless they have had this proplem, and so few do… Iv spoken to people online to you lot and its great to discuss the problems on here because ye understand, but in real life iv only ever met, HOH people or profoundly deaf people, no one like me in the middle. I have no one to truely Understand…I have people to talk to about it, Keith is the best in the world, but sometimes I feel so isolated and even though it seems like im doing so well and understand everything, the truth is sometimes I cant, and sometimes I just want to be on my own. Most days it doesnt bother me, but other days it does, and theres nothing I can do about that! Its up to other people to understand, not me, im the one who has to live with it already, why should I have to to change any more, iv enough adjustments to make!
Yet there is a part of me who wonders should I just be deaf, as in only use sign, but that wouldnt be the truth, I can hear little things, and I lipread really well, and im well able to speak, so NO I dont need to send myself to a group because it bothers other people!
Yet there is a danger of me waking one day soon and ill have no hearing at all… I cant lie anymore it does scare me, it scares the living shit out of me, and yet if it happens I know ill adjust again, and get on with it, but still I cant help feeling scared about loosing the hearing I have left. I have had hearing, and loosing it is a big deal… I have adjusted this far, but could I really live without Music, Keiths voice, My families voices, birdies, everything we take for granted…
Im sure I could but it would be so hard, I am loosing frequencies on a regular basis, and im trying so hard to deal with it, and adjust…. but will there be a time where I cant adjust anymore? what then?
Currently im involved in the Deaf Community Center in Limerick, and they are great, Sandra there so so nice and I feel like for once I have a place in the deaf community where im actually accepted for the problems I have, everyone is welcome there, and everyone gets on, no matter how severe, profound or mild your hearing problems are…I feel more people and places have to take that attitude.
I for one would welcome it with open arms.
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